Cohort 
2020

Karen Meenan

Theater & Radio Producer

To reduce the impact of dementia, we need to involve those living with dementia in co-creating enjoyable creative ageing projects

Current Work

Karen works with people living with dementia and their carers developing reminiscence theatre and radio broadcasts.  She has a special interest in Lewy Body Disease (LBD) and is co-founder and director of Lewy Body Ireland.

 

Personal Hero

Kevin Quaid - author of 'Lewy Body Dementia, Survival and Me' and 'I am KEVIN! not Lewy'

Words of Strength

Sparking Memories – Sharing Stories

Vision

To improve brain health, Karen believes we need to involve and include those living with all forms of dementia and their care partners to share their stories as the true experts living with these conditions.  We need to start a conversation that dementia is not just about Alzheimer's Disease and older people, and memory loss is not the only factor to consider.

Strategy

Karen is sharing the stories of those living with different neurodegenerative diseases on radio and in theater.  She founded 'Making Hay' dementia-inclusive theater in 2017 and has produced and directed three co-created plays from intergenerational workshops.  Her mission as director of Lewy Body Ireland is to raise the profile of this disease and build community for the estimated 10,000 living in Ireland with Lewy Body Disease.

Impact

As an Atlantic Fellow working during a pandemic, Karen wants to connect with the Lewy Body Community around the world, sharing their stories and raising awareness of this complex disease. She is passionate about starting a conversation that Alzheimer's Disease is not the only form of dementia and that younger people are also affected.

Motivation

64,000 people in Ireland are living with dementia and half a million families are affected.  Lewy Body Disease affects almost 10,000 people who are currently without support and turn to the UK and USA for help. Her aim is to create the first and only charity in Ireland specifically for people in Ireland and their carepartners living with LBD.