Semin Neurol. 2024 Apr;44(2):168-177. doi: 10.1055/s-0044-1782516. Epub 2024 Mar 14.
ABSTRACT
Underserved and underrepresented populations have historically been excluded from neurological research. This lack of representation has implications for translation of research findings into clinical practice given the impact of social determinants of health on neurological disease risk, progression, and outcomes. Lack of inclusion in research is driven by individual-, investigator-, and study-level barriers as well as larger systemic injustices (e.g., structural racism, discriminatory practices). Although strategies to increase inclusion of underserved and underrepresented populations have been put forth, numerous questions remain about the most effective methodology. In this article, we highlight inclusivity patterns and gaps among the most common neurological conditions and propose best practices informed by our own experiences in engagement of local community organizations and collaboration efforts to increase underserved and underrepresented population participation in neurological research.
PMID:38485127 | DOI:10.1055/s-0044-1782516
Authors
Charles Windon, MD
Assistant Professor of Clinical Neurology
Gloria Aguirre
Community Engagement Manager and Creative Minds Artistic Director
Tanisha Hill-Jarrett, PhD
Neuropsychologist
Stefanie Piña Escudero, MD
Geriatrician
Boon Lead Tee, MD, MS
Neurologist
Joel Kramer, PsyD
Professor of Neuropsychology
Serggio Lanata, MD, MS
Associate Professor of Neurology
