Increasing Sustained Diversity in Alzheimer’s Disease Clinical Trials

Join us for a special online event focusing on how Alzheimer’s disease clinical trials can improve recruitment, enrollment, and retention of diverse populations to ensure potential treatments are safe, effective, accessible, and equitable. A global lineup will speak followed by discussion and Q&A. This event is co-hosted by the Alzheimer’s Association, Global Brain Health Institute, and Center for the Study of Race, Ethnicity & Equity, Washington University in St. Louis, and brings together the work of the Alzheimer’s Association Clinical Trials Advancement and Methods & Diversity and Disparities Professional Interest Areas (PIAs) as they launch a Diversity in Clinical Trails Work Group together with a GBHI Interest Group.

Hosted by:

• Alzheimer's Association (Diversity and Disparity PIA, Clinical Trials Advancement and Methods)
• Global Brain Health Institute
• Center for the Study of Race, Ethnicity & Equity, Washington University in St. Louis

Goals:

Presenters and panelists will discuss the need for a more thoughtful approach/frameworks to increase diversity in Alzheimer's disease (AD) clinical trials and expand access to low- and middle-income countries (LMIC). Symposium attendees will achieve the following learning objectives:

1. Identify current limitations and barriers that contributes to homogenous samples in existing AD clinical trials.
2. Leverage available evidence of on-going AD trials to develop strategies to address ethical complexities in recruitment, enrollment and retention of diverse populations.
3. Provide guidance and recommendations that enable and facilitate sustained AD clinical trial participation of diverse communities.

Presenters:

Erin Abner, PhD
Department of Epidemiology, University of Kentucky, USA
Vice-chair Clinical Trials Advancement and Methods

Rema Raman, PhD
Director of Biostatistics and Recruitment, Alzheimer’s Therapeutic Research Institute (ATRI)
Keck School of Medicine, University of Southern California

Stephanie Monroe, JD
Executive Director
African Americans Against Alzheimer’s

Sonia Brucki, MD, PhD
Department of Neurology, Hospital das Clínicas
Universidade de São Paulo, Brazil

Suvarna Alladi, MD
Department of Neurology
National Institute of Mental Health and Neurosciences, India

Rufus Akinyemi, PhD, MSc
Centre for Genomics and Precision Medicine
University of Ibadan, Nigeria
Atlantic Fellow for Equity in Brain Health at the Global Brain Health Institute

Bruce Miller, MD
Director, UCSF Memory and Aging Center
Co-Director, Global Brain Health Institute

Additional speakers to be announced.

Moderators:

Jorge J Llibre-Guerra, MD, MSc
Dominantly Inherited Alzheimer’s Network Trials Unit
Knight Alzheimer’s Disease Research Center
Washington University School of Medicine in St. Louis
Atlantic Fellow for Equity in Brain Health at the Global Brain Health Institute

Ganesh M Babulal, PhD, OTD, MSCI, MOT
Chair, Diversity and Disparities PIA (Alzheimer’s Association)
Knight Alzheimer’s Disease Research Center
Washington University School of Medicine in St. Louis